Physical and Psychological Well-Being of Caregivers of Children with Cerebral Palsy at Hearts, Hands, and Voice Foundation, Winneba

ABSTRACT

This qualitative study examined the physical and psychological well-being of caregivers of children with cerebral palsy at the Hearts, Hands, and Voice Foundation, Winneba. The study employed a descriptive case study design. Twenty (20) caregivers of children with cerebral palsy, ranging in age from 20 to 69 years old who frequently visit the care center were purposefully sampled. Through semi-structured interviews, caregivers shared their personal experiences, concerns, and perspectives on their well-being. Thematic analysis revealed key themes in physical health status and psychological well-being. Caregivers reported frequent physical strain, chronic pain, fatigue, and limitations in daily activities. Emotionally, they expressed feelings of stress, anxiety, and isolation. Many caregivers highlighted concerns about accessing adequate healthcare and specialized services for their children, often relying on foundations and support organizations for assistance. Support networks, such as the Hearts, Hands, and Voice Foundation, the Ghana Federation of Disabilities, and local community groups, were crucial in providing information, training, and social support. These resources helped caregivers gain knowledge, connect with others in similar situations, and receive necessary assistance. The findings underscore the significant impact of caregiving on both physical and psychological well-being and highlight the need for increased support and comprehensive healthcare services for caregivers. Recommendations from this study inform the development of interventions to improve the well-being of caregivers of children with cerebral palsy.

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